PhD Defence Lisa Verberne: The value of case management in paediatric palliative care
05 September 2017
In the Netherlands around 4000 – 6700 children with life-limiting diseases could benefit from paediatric palliative care (PPC). However, adequate PPC is often absent due to the lack of continuity and coordination of care and limited expertise among healthcare professionals (HCP). Consequently, many parents feel alone with managing the care for their ill child at home.
In response to the shortcomings in PPC, in 2012 the first Dutch paediatric palliative care team was initiated as a three-year pilot project at the Emma Children’s Hospital in Amsterdam; the ‘Emma Thuis team’. This transmural multidisciplinary team aims to bridge the gap between home and hospital and is responsible for the quality, continuity and coordination of PPC. We evaluated the value of the Emma Thuis team with an interpretative qualitative interview study among 42 parents of 24 children with life-limiting diseases and 35...